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Global Genes
National Organization for Rare Disorders (NORD)
Eurordis (Rare Diseases Europe)
Canadian Organization for Rare Disorders (CORD)
University of Pennsylvania Orphan Disease Center
Rare Voices Australia (RVA)
American Epilepsy Society (AES)
Child Neurology Foundation
Citizens United for Research in Epilepsy (CURE)
Epilepsy Foundation
FACES: Finding a Cure for Epilepsy and Seizures
Lennox-Gastaut Syndrome Foundation
Genetic and Rare Diseases Information Center (GARD)
NIH/Clinical Trials (clinicaltrials.gov)
National Institutes of Health (NIH)
National Institute of Neurological Disorders and Stroke (NINDS)
National Center for Advancing Translational Sciences (NCATS)
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
